Our Story
"I was told that I would never meet another person with this condition."
Melissa Dickinson's journey with Ehlers-Danlos Syndrome was one of isolation and struggle. Featured on CNN International, her story sheds light on the challenges faced by those living with EDS.
"My joints were constantly subluxing and dislocating. I was in pain all the time."
Her path from years of misdiagnosis to founding a movement began with a single Facebook post seeking other EDS patients — and what she found was a community of thousands who had been suffering in silence.
